The Singing Nurse

SMA Child’s Tribute to His Mom

“If I Could Say It.”

♥ If I could say it, I would say I love you Mom.  You know how to handle me and care for me the very best of anyone.  You are ever learning about kids like me and teach my nurses how to help me.

♥ You always try different things to care for me because I can’t talk and tell you what I want or need. I don’t talk but I vocalize with my sighs, and you listen. You read the expression of my eyes, I like when you look in my eyes.

♥ Mom you always get me what I need. I need a wheelchair, so I can go for walks and enjoy the sunshine outside during the warmer months. I’m too big now for my stroller, you are making sure the right people are working on it. When we needed a big tub you rallied all the workers and got things moving. You always speak for me.

♥ Even though you work hard all day, thanks for sleeping close by on the couch when I’m having a rough night so you can be ready if the nurses and I need you. When I’m upset or something is hurting in my body, you give the best massages and comfort. I love your kisses too.

♥ Thanks for hoping and keeping that sparkle in your eye. Mom you brighten my day. Thanks for loving me the way you do.

Happy Mother’s Day,

Kian

____________________________________________________________________________________________

More information on Spinal Muscular Atrophy to come.  Click contact if you would like to be placed on our e-mail list when this post is updated.

For Nurturing Children, Ms. Dawn, The Singing Nurse

Jenna is a very sweet 17 year old and a typical teen in every way.  Because of her many illnesses, surgeries and the loss of a younger brother, Jenna has developed a genuine compassion for others. Jenna ended up having scoliosis and while they were correcting the scoliosis, a tumor was dislodged which caused a partial stoke. Jenna is now a partial paraplegic and was told by the doctor that she would never walk again. Jenna has baffled many doctors and medical professionals over her life time which has added to her resolve to walk once more. To encourage this hope we wrote a song sharing her struggles and victories with a pinch of finger wagging in the face of those who might have unknowingly stolen her spark. The lyrics proclaim “I want to walk again, I’m gonna walk again, yes I am I am, well the doctors said I never would, but I am, but I am, but I am”.

**The Writing Process

Jenna has some learning disabilities so we took it slow, I had the chorus idea and showed it to Jenna, she loved it. I asked Jenna to give me some words that would describe her desire to walk, how she feels about being in a wheelchair, what are the difficulties of learning to walk and what has inspired her to keep trying. We took those words and went to the rhyming dictionary and found all the words that would help Jenna tell her story and wrote the lyrics together. I asked Jenna to give me a little melody that was different from the chorus and what we finally came up with was a collaboration of notes, musical ideas, fun times and hopes.

**The Recording Process/Media Project

My son, two young musician friends, guitar player husband and I are waiting for the final mix to be complete. It will be interesting to see how it all falls together. I have been doing some short video clips of Jenna working with her PT, OT, and our recording sessions. I am excited about the finished product, how it will encourage Jenna to keep climbing her mountain and how it might provide inspiration to other young people who have their own set of difficult circumstances.

We have a pipe dream of the Jonas Brothers(Jenna is ga ga over them) singing it at one of their shows and having Jenna and other young people with disabilities part of the production.

Some of the words

When I wear by braces,

I see the look on your faces

When I get up, it’s really tough,

The prize for me, is at the end

So I try and I try and I try again

Stay Tuned: If all works out, it will be available for viewing @ The Singing Nurse YouTube channel.

Anyone have any connections to the Jonas Brothers ?

02/28/2009

Hope you all have endured the cold winter, I am sooo.. looking forward to the warmer weather. March is one of those iffy months where the temps and conditions outside can be unpredictable. Just to encourage you, the warmer weather is just around the corner.

I have added a new page called “Jenna’s Story” under the Disabilities tab. I have known Jenna for about 14 years and this young lady and her family have endure many set backs. I was Jenna’s nurse when she was 3 years old and she has had health issues all of her life. Jenna was born premature and over time the family discovered Jenna had other issues which have impacked them greatly. I don’t want to let too much out of the bag because I want her tell the story. She is full of faith and I know she will encourage you with her unbelievable zest for life. If you have any comments or would like to ask a question, put Jenna in the subject and send us an email to: TheSingingNurse@gmail.com

Check out Jenna’s videos @ www.YouTube.com/TheSingingNurse

The special during March if you have not heard already, is a give away. Purchase The Singing Nurse CD during March and we will send you Two TSN Little Books while supplies last. You can read more about “TSN Little Books” under the Kids tab.

Have a wonderful month of March and remember to keep singing!

Ms. Dawn, The Singing Nurse