SMA Child’s Tribute to His Mom

May 5, 2010 in Chronic Illness - Disabilities, God - Faith - Hope - Love, Nurturing the Child, Uncategorized

SMA Child’s Tribute to His Mom

kian abc pic 098

“If I Could Say It.”

If I could say it, I would say I love you Mom.  You know how to handle me and care for me the very best of anyone.  You are ever learning about kids like me and teach my nurses how to help me.

You always try different things to care for me because I can’t talk and tell you what I want or need. I don’t talk but I vocalize with my sighs, and you listen. You read the expression of my eyes, I like when you look in my eyes.

Mom you always get me what I need. I need a wheelchair, so I can go for walks and enjoy the sunshine outside during the warmer months. I’m too big now for my stroller, you are making sure the right people are working on it. When we needed a big tub you rallied all the workers and got things moving. You always speak for me.

Even though you work hard all day, thanks for sleeping close by on the couch when I’m having a rough night so you can be ready if the nurses and I need you. When I’m upset or something is hurting in my body, you give the best massages and comfort. I love your kisses too.

Thanks for hoping and keeping that sparkle in your eye. Mom you brighten my day. Thanks for loving me the way you do.

Happy Mother’s Day,

Kian

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More information on Spinal Muscular Atrophy to come.  Click contact if you would like to be placed on our e-mail list when this post is updated.

For Nurturing Children, Ms. Dawn, The Singing Nurse


 

 

 

 


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SMA Child’s Tribute to His Mom

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SMA Child’s Tribute to His Mom

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